My hearing test went fine yesterday and we were on all systems go to start radiotherapy on July 18th, with visits to the Marsden tomorrow and Monday.
Then I get a phone call from the hospital to say there's a discrepancy between what the consultant's referral letter states I have and what the histology shows, so they are doing further reviews and as a result will be putting back the start of my treatment. And they want to make sure there's nothing behind the tongue or in the larynx. And, depending on what they find/decide, there's a possibility I may have to have chemo as well as radiotherapy.
I feel as if I have had a huge setback. I was ready to start the next phase and now I have no idea what that next phase is, or even what it is the next phase is designed to treat. Feeling very fragile and low.
Something nice did happen today, though - some friends visited and presented me with the most beautiful, hand-made quilt (made by an extremely talented friend, Yvonne) and all my Runners World friends had written comments on it to give me encouragement and comfort at this - quite frankly - bloody awful time. Thank you to all of them for caring for me and to Linda for arranging it all. Such a great bunch of friends!
Neil and I need to process this latest setback. It seems as if I am having the most extraordinary run of bad luck all the way through this and I don't feel very strong about it all at the moment. It feels as if I have been knocked over and am struggling to get back up. I know that Neil, the children, my birth family and friends will help and support me through it but I feel terribly fragile right now.